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In Our Own Words  
                                

 

 

 

 

 

 

 

 

 

 

 

  

 

   


 


Welcome to "In Our Own Words"

Here is were you can tell your own story.  Send the story of epilepsy in your life to the AER via e-mail or to the address below. Those of you who have the disease, tell what it is like, what caused your epilepsy, how and when epilepsy appeared in your life, what the limitations are, what your feelings are, what you would need to make life better, what you have lost and gained. Those of you who live with someone who has epilepsy or have a friend with epilepsy, tell about your experience, frustrations, feelings. Those of you in epilepsy health care tell what you see each day and how that makes you feel. All of you tell how improvements in treatments or a cure for epilepsy would change your life.

These stories will be featured in the AER web site - no names if you prefer - and if there are enough, the Alliance could publish them as a book to be sold to raise money for research.  Don’t worry about spelling, grammar or punctuation, just tell your story - any length.  Parents, maybe you could help your young ones. Include your name, address and phone number.  Also include pictures if possible, especially a family one.

Click on the name or title below to go to those words.

Lori Shively's Words - the first of our stories that tell what it is like to have epilepsy.
A Dream Come True - Dr. Ivan Osorio
The Voice of Mary Ward 
Words of Encouragement
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Holy Trinity Episcopal Church, Brookville, Pennsylvania
Robin L. Whitaker Lindsay  
Caree Ruch's Words  
By Steven Meyer, D. V. M.  
Robert Calhoun's Words  

 

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The Alliance for Epilepsy Research can be reached at:

Alliance for Epilepsy Research
1059 East 1479 Road
Lawrence, KS 66046

Phone Toll Free: 1-866-237-2929
Fax: 1-866-237-2929

Email: alliance@epilepsyresearch.org


03/22/05